Patient-oriented research asks everyone to push beyond what is familiar and embrace new ways of working.

Can-SOLVE CKD has created a suite of training programs to help network members enhance their skills and knowledge in this area. Five programs are available, covering a wide range of subjects from knowledge translation to Indigenous cultural safety.

These programs, which form the branches of the Can-SOLVE CKD Learning Tree, are based on the findings of a 2017 survey that determined the greatest training needs in patient-oriented kidney research. They are rooted in the core values of Respect, Reciprocity, Relevance, Relationships, and Reflection.

Learning Tree
Learning Tree

Can-SOLVE CKD Learning Branches

KidneyPro

This module was created to help patients better understand the research process and landscape in Canada, with the goal of helping them participate more meaningfully throughout all stages of research. KidneyPro, along with providing a general overview of kidney research in Canada, helps participants familiarize themselves with the roles that patient partners can play in research.

Access this module

Storytelling for Impact

All patients and their family members have important stories that capture the emotions and real-life experiences of what is like to live with kidney disease and receive care. Sharing these stories with research teams and others is a helpful strategy for fostering better appreciation and understanding of what it is like to live with kidney disease. Through an eight-week course, this program helps patient partners learn how to craft and share their health care stories in an impactful way. Participants taking this module learn how to organize their story by writing about two moments in care that they wish to share, along with a call to action for improving kidney care.

Access this module

Wabishki Bizhiko Skaanj Learning Pathway

Wabishki Bizhiko Skaanj will enhance researchers’ knowledge and awareness of racial biases, Indigenous voices and stories, the impact of colonization on Indigenous health, and culturally safe health research practices. This online learning pathway brings together existing resources with original content that will be developed by the Can-SOLVE CKD Indigenous Peoples’ Engagement and Research Council.

Developed in partnership with Diabetes Action Canada, the British Columbia Provincial Health Services Authority and several First Nations health organizations, Wabishki Bizhiko Skaanj aims to help researchers and patient partners build respectful partnerships with Indigenous peoples.

Access this module

Patient Engagement Toolkit

As patients and researchers began to work together more and more, there was a need for practical tools to support these collaborations. Therefore, the TMC created the Patient Engagement Toolkit, which helps research teams communicate, identify common goals, and define roles for patients. The toolkit includes tips for collaboration in patient engagement, a glossary of terms, and practical tools to support the internal functioning of teams, such as a skills and contributions chart.

Access this module

KT Principles

This branch is dedicated to enhancing the understanding and importance of knowledge translation (KT). KT involves creating and applying knowledge in ways that maximize the effectiveness of health services and products.

Access this module