Can-SOLVE CKD Resources
- Tips for Collaboration in Patient Engagement
- Engaging Patients in the Research Process: A Toolkit for Project Leads
- Can-SOLVE CKD Glossary of Terms
- Practical Tools for Teams:
Canadian Institutes of Health Research
- CIHR Jargon Buster
- Strategy for Patient-Oriented Research: Patient Engagement Framework
- CIHR’s Innovative Knowledge Translation Strategies: A Four-part Webcast Series
- SPOR SUPPORT Units (links to each website with local resources)
Other Canadian Resources
- Canadian Foundation for Healthcare Improvement’s Patient Engagement Resource Hub
- Patient Engagement—Heard and Valued: A handbook for meaningful engagement of patients that have not traditionally been heard in healthcare planning
- KidsCan
International Resources
- INVOLVE Briefing Notes for Researchers: Public Involvement in NHS, Public Health and Social Care Research
- Mosio’s Clinical Trial Patient Recruitment and Retention Tips and Strategies
- International Association for Public Participation (IAP2)
- International Children’s Advisory Network (iCAN)
- How to Read and Understand a Scientific Paper – Patient Empowerment Network
Last updated: May 17, 2018
Educational resources
- Can-SOLVE CKD Glossary of Terms
- Tips for Collaboration in Patient Engagement
- Patient handbook (Kidney Foundation of Canada)
- Chronic kidney disease fact sheets (Kidney Foundation of Canada)
- 3 Steps to Planning for Dialysis: A Patient’s Guide (Canadian Kidney Knowledge Translation and Generation Network)
- Healthy Kidneys (Resources for Children) (Canadian Kidney Knowledge Translation and Generation Network)
Organizations
Provincial renal programs
- BC Renal Agency
- Northern Alberta Renal Program
- Southern Alberta Renal Program
- Saskatchewan – Regina Qu’Appelle Health Region kidney program
- Manitoba Renal Program
- Ontario Renal Network
- New Brunswick – Horizon Health Network dialysis program
- Nova Scotia Renal Program
- PEI Renal Program
- Newfoundland – Western Health Renal Care Unit
Last updated: July 31, 2018
Patient Handouts on CKD Symptoms
Symptom Guidelines for Clinicians
Note: The resources listed above were developed through the EMPATHY Trial.
Last updated: May 14, 2019
Educational resources
- First Nations Principles of OCAP (The First Nations Information Governance Centre)
- Truth and Reconciliation Commission of Canada
Organizations
- First Nations Health Authority (British Columbia)
- PHSA Indigenous Health (British Columbia)
- National Aboriginal Diabetes Association
Training
- The Role of Practitioners in Indigenous Wellness | University of Saskatchewan
- Cultural Safety and Cultural Humility Webinars | First Nations Health Authority (British Columbia)
- San’yas Indigenous Cultural Safety Training
Articles
Last updated: July 31, 2018
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