Theme 2: Better Treatments

Theme 2: Better Treatments 2018-08-01T11:22:15+00:00

The research projects listed below will define the best treatments to improve outcomes and quality of life.

Projects are based on priority questions identified by patients with early or advanced chronic kidney disease, their families and care providers.

2018-08-01T16:32:00+00:00

Clinical trials of promising re-purposed drugs for ADPKD

Advances in ADPKD research have identified a number of promising therapeutic drugs. Several of these drugs are re-purposed compounds that are currently approved for diseases other than ADPKD. We plan to perform two pilot control trials of two of these therapeutic drugs to test the impact on ADPKD patients and to evaluate their potential.

2018-08-01T16:37:40+00:00

EMPATHY: Patient-reported outcomes clustered RCT

Evidence suggests that patient-reported outcomes measures (PROMs) have a positive impact in clinical practice; however, the impact on health outcomes and experiences is not fully understood. This research aims to fill this gap by evaluating the impact of routinely measuring and reporting patient-reported experience and outcomes, clinical outcomes, and healthcare utilization.