APPROACH: Risk prediction to support shared decision-making for managing heart disease


Project Leads: Dr. Matthew James and Dr. Stephen Wilton Patient Lead: Carol Connolly Patient Group: Patients who have experience with kidney disease and heart disease Region: Alberta View Project Website Heart disease is very common in people with chronic kidney disease (CKD), and is a major cause of hospitalization, reduced quality of life, and shortened survival. When people with [...]

Integrating risk-based care for patients with CKD in the community


Project lead: Dr. Navdeep Tangri Patient lead: Dwight Sparkes Patient group: Patients with CKD (not on dialysis), patients on dialysis and patients with transplant Region: All regions View Project Website Kidney disease is common, but not all patients will reach kidney failure. In most patients, risk factors can be controlled and kidney function can stay stable for many years. [...]

Defining risk and personalizing treatment of patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD)


Project lead: Dr. York Pei Patient lead: David Hillier Patient group: Adult patients with ADPKD without end-stage renal disease Regions: All regions View Project Website Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited kidney disease. There are two types of ADPKD due to mutations of two different genes: PKD1 and PKD2. PKD1 accounts for 75% of [...]

Canadian Glomerulonephritis Registry


Project leads: Dr. Heather Reich Patient lead: Susan McKenzie View Project Website Our project will create a network to develop personalized treatments for patients with GN and identify new ways of detecting high-risk GN. To do this, we will build upon an established research program to develop a collaborative national patient-centered program. We will expand [...]

Kidney Check: Identifying kidney disease and diabetes in Indigenous communities


Project lead: Dr. Paul Komenda Patient lead: Cathy Woods Patient group: Indigenous patients with kidney disease in a range of age groups Regions: British Columbia, Alberta, Saskatchewan, Manitoba, Ontario View Project Website Indigenous people have a higher risk of CKD and kidney failure compared to the non-Indigenous population. This may be due to increased rates of diabetes, [...]

AdDIT: Adolescent Type 1 Diabetes Cardio-Renal Intervention Trial


Project leads: Dr. James Scholey, Dr. Farid Mahmud, Dr. Etienne Sochett Patient lead: Lynne McArthur Patient group: Youth with diabetes and their parents Regions: British Columbia, Alberta, Manitoba, Ontario, Quebec, Nova Scotia View Project Website Young people diagnosed with type 1 diabetes are at risk of long-term complications, including kidney and heart disease. AdDIT is studying an observational [...]

iCARE: Improving renal complications in adolescents with type 2 diabetes through research


Project leads: Dr. Allison Dart and Dr. Brandy Wicklow Patient Group: Youth with diabetes and their parents Regions: British Columbia, Alberta, Manitoba, Ontario, Quebec, Nova Scotia View Project Website The AdDIT (Adolescent Diabetes Cardio-Renal Intervention Trial) and iCARE (Improving Renal Complications in Adolescents with Type 2 Diabetes through Research) studies are working together to identify the most [...]