The Patient Governance Circle is the core and the heart of Can-SOLVE CKD
The 12-person Patient Governance Circle is an agile decision-making body reflecting the significant breadth of expertise among Can-SOLVE CKD patient partners. It is composed patients affected by a broad range of medical conditions (e.g., diabetes, heart disease, polycystic kidney disease) as well as family caregivers and kidney donors.
The Patient Governance Circle meets on a monthly basis to provide input and guidance on all aspects of Can-SOLVE CKD, from setting priorities to supporting patient engagement in the collection and communication of research evidence.
Patient Governance Circle members are actively involved in all network activities through four working groups:
- Curriculum & Training for Patient Participation in Research Working Group
- Knowledge Translation, Communications & Outreach Working Group
- Measurement & Metrics Working Group
- Research Projects & Recruitment Working Group