Patient partners are vital to the success of the Can-SOLVE CKD Network.
We need voices from all over Canada, who are different ages and from different backgrounds and cultures, to shape and enrich our research projects. Patient partners include not only patients but also caregivers, family members and those that are directly affected by kidney disease.
If you are interested in being a patient partner and want to find out about opportunities to get involved in research, sign up today through our KidneyLink portal. We look forward to connecting with you!
Current Engagement Opportunities
|Self-management website naming
We need your help to name a patient self-management website that is currently being developed for the Can-SOLVE CKD project “Strategies to enhance patient self-management of CKD”. The purpose of the website is to provide patients with chronic kidney disease (not on dialysis) and caregivers tailored information and resources to help them manage their CKD.
To submit your entry, contact Mo Donald (email@example.com) by June 30. Everyone who submits is eligible to win a $50 gift certificate – the prize draw will take place after June 30 and the winner will be contacted by email.
|Decision-making needs for managing heart disease
Heart disease is one of the most common causes of hospitalization and death in people with chronic kidney disease (CKD).
APPROACH researchers need your help to understand what is important to people with CKD in the event they have a heart attack and are faced with choosing between treatment options. Please consider completing a brief 20-minute survey that will help us provide decision-making support to patients with CKD and their family members.
|Survey: Priorities for improving hemodialysis care
The Triple I research team is looking for volunteers with lived hemodialysis experience to participate in an anonymous survey. This survey will help the team understand what people receiving in-centre hemodialysis (HD) need and want from their health providers. People on in-centre HD, family members and caregivers of people on in-centre HD, and health care providers in HD are eligible.
Are you a patient (or family member) with experience of hemodialysis? The EMPATHY Trial research team wants your help in creating resources to communicate the impact of research.
Glomerular Disease (glomerulonephritis) is a group of diseases that injure the part of the kidney that filters blood (called glomeruli). An international initiative called SONG-GD is conducting a survey to ask about what impacts of treatment and disease are important to patients – outcomes that you think should be reported in research in people with glomerular disease.
|Survey: Research questions on exercise for people with CKD
The role of exercise in chronic kidney disease (CKD) has been identified as a research topic that is important to patients and their caregivers. University of Alberta researchers are looking for people with kidney disease and/or their caregivers to help inform research in this area by participating in 3 online surveys during May-August.