We are pleased to announce that our Can-SOLVE CKD Patient Council is evolving! Due to the growth in interested patient partners, the Patient Council Executive held a number of strategic planning sessions to discuss the evolution of the Patient Council. A new structure and function emerged from these discussions, resulting in the formation of the new Patient Governance Circle!
The Patient Governance Circle brings together the existing Patient Council Executive members with a group of highly active patient partners who have taken on leadership roles across the Can-SOLVE CKD Network. The resulting 12-person Patient Governance Circle will be an agile decision-making body reflecting the significant breadth of expertise among Can-SOLVE CKD patient partners. As the network looks ahead, the newly formed Patient Governance Circle will allow our patient partners to be meaningfully engaged in the network’s activities as we expand our pool of partners across country. The new structure will also provide ongoing mentorship and guidance to the Can-SOLVE CKD Steering Committee as the network plans for a sustainable future.
The current Patient Council will be expanded to form a National Patient Network bringing together kidney patients from across Canada and connecting them through our online patient portal, KidneyLink.
The formation of the new Patient Governance Circle will support the continued growth and development of patient-oriented research within Canada. We would like to thank the Patient Governance Circle members for their continued commitment to providing better kidney health for Canadians through patient-oriented research. Continue reading to learn more about our Patient Governance Circle members!
Meet our Patient Governance Circle
” I’m looking forward to working with a bigger group in the Patient Governance Circle. Fresh faces and new ideas will add to what we’ve started in the Patient Council Executive. We were looking for ways to add sustainability as we move forward and the PGC is crucial as we enter the next phase of our development. “
Can-SOLVE CKD Involvement: Patient Governance Circle Co-Chair | IPERC | CNTN Communications and Engagement Committee | Elders in Research Working Group | Indigenous Research Ethics and Protocols Working Group | Knowledge User and Knowledge Translation Committee | Learning Pathway Working Group | Research Operations Committee | Kidney Check | Cell therapy interventions to prevent loss of kidney function | Improving Indigenous patient knowledge about treatment options | Increasing the use of living donor kidney transplantation
Can-SOLVE CKD Involvement: CNTN Executive Committee | Canadian Glomerulonephritis Registry | KFRE: Integrating risk-based care for patients with CKD in the community | Cell therapy interventions to prevent loss of kidney function | Strategies to enhance patient self-management of CKD | KidneyPro Working Group | Knowledge Translation Community of Practice | Research Training and Mentorship Committee
Can-SOLVE CKD Involvement: Canadian Glomerulonephritis Registry | Increasing the use of living donor kidney transplantation — Transplant Ambassador Program
Can-SOLVE CKD Involvement: Patient Governance Circle Co-Chair | Triple I: Priorities for improving information, interaction, and individualization among patients on hemodialysis | Increasing the use of living donor kidney transplantation
” I am honoured to be a member of the Patient Governance Council to share my knowledge, experiences and gifts as an Indigenous woman who was/is a caregiver to a transplant recipient and donor. As a patient partner, I have lived experiences that can hopefully help someone else who is affected by chronic kidney disease or transplantation. ”
Can-SOLVE CKD Involvement: IPERC Co-Chair | Kidney Check | Increasing the use of living donor kidney transplantation | Research Training and Mentorship Committee | Elders in Research Working Group | Learning Pathway Working Group | Indigenous Research Ethics and Protocols Working Group
” I have been involved with Can-SOLVE CKD since the original grant review in 2015. My participation since 2015 has included participation as a patient lead, chair of a working group, member of the executive patient council as well as multiple committees and working groups. I am excited to be one of the co-chairs of the Patient Governance Circle as Can-Solve CKD continues to deliver on it’s commitment to Patient Oriented Research. “
Can-SOLVE CKD Involvement: Patient Governance Circle Co-Chair | Defining risk and personalizing treatment of patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD) | Clinical trials of promising re-purposed drugs for ADPKD | Research Operations Committee
Can-SOLVE CKD Involvement: Patient Governance Circle Co-Chair | IPERC Co-Chair | Knowledge Translation Community of Practice | Kidney Check | KFRE: Integrating risk-based care for patients with CKD in the community
Can-SOLVE CKD Involvement: KidneyPro Working Group | Increasing the use of living donor kidney transplantation | Research Training and Mentorship Committee
Can-SOLVE CKD Involvement: Increasing the use of living donor kidney transplantation
Can-SOLVE CKD Involvement: CNTN Scientific Operations Committee | Portal Working Group
Can-SOLVE CKD Involvement: IPERC | KidneyPro Working Group | Knowledge Translation Community of Practice | Kidney Check | Targeted De-prescribing in patients with chronic kidney disease to decrease polypharmacy | Triple I: Priorities for improving information, interaction, and individualization among patients on hemodialysis | Research Training and Mentorship Committee
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