Can-SOLVE CKD was hard to miss at the 2018 SPOR Summit. Fifteen network members, including 10 patient partners, played active roles in this biannual gathering of Canada’s patient-oriented research community, held November 13-15 in Ottawa.
The summit was hosted by the Canadian Institutes of Health Research (CIHR) to bring together more than 300 individuals working on patient-oriented research initiatives across Canada. Participants included patient partners, researchers, clinicians, policy-makers from provincial ministries of health, and staff members from the provincial SUPPORT Units and national networks funded through the Strategy for Patient-Oriented Research (SPOR).
The goal of the summit was to create opportunities for those working in patient-oriented research to share successes, experiences, and lessons learned.
Among the highlights of Can-SOLVE CKD’s involvement were:
- Cathy Woods (Patient Council & IPERC Co-Chair) helped to shape the summit’s program as a member of the planning team and also served as co-emcee of the summit’s first day.
- Mike McCormick (Patient Council Co-Chair) represented Can-SOLVE CKD on a panel discussion about patient partners’ perspectives on engagement and impact.
- Chantel Large (patient partner), Kevin Settee (patient partner), and Craig Settee (IPERC Coordinator) participated in a panel discussion on patient-oriented research from an Indigenous perspective. They shared their personal journeys and highlighted the work of Can-SOLVE CKD’s Indigenous Peoples’ Engagement and Research Council (IPERC) and Wabishki Bizhiko Skaanj Learning Pathway.
- Gwen Herrington (patient partner) and Leah Getchell (Facilitator, Patient Engagement & Training) participated in a rapid-fire session showcasing specific patient engagement activities underway within SPOR initiatives. Their presentation described the work of the Research Training & Mentorship Committee, focusing on a new module that will help network members share their personal health care stories for educational and research discussion purposes.
- Gwen Herrington presented a poster on behalf of the Can-SOLVE CKD research project “Strategies to enhance patient self-management of chronic kidney disease”. Gwen is the patient lead of this project which aims to understand how we can empower patients to self-manage chronic kidney disease in order to improve disease progression and overall patient experience and well-being.
- Mary Beaucage (Patient Council Co-Chair and member of the Knowledge User and Knowledge Translation (KU/KT) Committee) presented a poster outlining the work of the KU/KT Committee. The committee works with Can-SOLVE CKD research teams to share research findings effectively with patients, the public, and policy-makers.
- David Hillier (Patient Council Executive) presented a poster describing the involvement of patient partners in the Can-SOLVE CKD Research Operations Committee (ROC). This novel approach has enhanced peer review of the network’s research projects as well as the ROC’s overall functioning.
- Dr. Adeera Levin (co-lead) and Leah Getchell represented Can-SOLVE CKD at the SPOR Participants Council meeting.
In addition to the presenting individuals noted above, the following Can-SOLVE CKD members represented the network at this year’s summit: Selina Allu (Knowledge Translation Broker), Tamara Beardy (Can-SOLVE CKD patient partner and Project Coordinator for the Indigenous Youth Mentorship Program), Heather Harris (Executive Director), Helen Robinson-Settee (IPERC Co-Chair) and Hans Vorster (patient partner).
On behalf of the Can-SOLVE CKD Network, thank you to everyone who took part in this year’s SPOR Summit! It was an amazing week of sharing and learning. There is so much great work in patient-oriented research taking place across Canada, and we are proud to be a part of it!