Patient partners and researchers from two national chronic disease networks, Can-SOLVE CKD and the CHILD-BRIGHT Network, came together this month to learn about patient engagement in health research.
The two networks hosted a one-day workshop on March 12th at which the Foundations in Patient-Oriented Research curriculum was presented. Facilitators Helen Chiu (Can-SOLVE CKD Patient Engagement Liaison) and Pierre Zwiegers (CHILD-BRIGHT Training Coordinator) led 13 participants through all three modules of the Foundations curriculum using a combination of an in-person learning workshop and an online webinar.
“This training session represented an excellent opportunity for collaboration between two national networks seeking to build and enhance capacity for patient involvement in chronic disease research,” said Chiu.
The training, hosted at the BC Children’s Hospital Research Institute in Vancouver, opened with a blessing from Elder Roberta Price, who welcomed participants to the traditional territories of the Musqueam, Squamish, and Tsleil-Waututh peoples.
The adapted curriculum, originally developed by CIHR’s Curriculum Reference Group, is being offered around the country to individuals working in patient-oriented research. It aims to build partnerships between researchers and patients that are based on inclusiveness and mutual respect. Can-SOLVE CKD has previously offered all three modules to network members at training sessions across Canada.